Honouring Alexandra Local Shane Lewis and Continuing the Fight Against MND

Shane was diagnosed with Bulbar Onset Motor Neurone Disease (MND) in early 2024. Throughout his journey, Shane and wife Marlene faced the many challenges that come with this devastating disease, while continuing to show incredible strength, humour and determination. Today, this website continues in Shane’s memory, advocating for better support systems, improved awareness, greater access to care and ongoing hope for better treatments and ultimately a cure for MND. Help Today

Honouring Shane Lewis Through Awareness, Advocacy and Hope

Although Shane is no longer with us, our advocacy journey certainly isn’t over. Through Shane’s battle with MND, our family experienced firsthand the many challenges, gaps and delays within the systems that people with terminal illnesses are forced to navigate. We continue to advocate for improvements across healthcare, aged care, disability support, regional services, funding access and end of life choice, so that other families may face a smoother path in the future. At the same time, we remain hopeful. Every day, researchers around the world are working towards better treatments, improved quality of life and ultimately a cure for MND. We encourage people to continue supporting their state MND organisations, MND Australia and FightMND through donations, fundraising, advocacy and awareness. MND affects not only the person diagnosed, but also the families, carers and communities around them. Continued support for research and services is vital if we are to create real change and one day live in a world free from this devastating disease.