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Shane Lewis MND Battle

A site to help Shane Lewis with support in his battle with Motor Neurone Disease

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  • Blog Posts
    • One Step Closer: Bathroom Progress & Unexpected Kindness
    • Bathroom Renovation Update: One Step Closer to Accessibility
    • Running in Support of MND (Berwick-Pakenham Gazette 12/02/2025)
    • Was the $1800 OT Report Worth It? Our Honest Take
    • The Silence That Hurts: When Friends and Colleagues Disappear
    • MND Relay 2025
    • Teaming up to fight MND (Berwick-Pakenham Gazette 05/02/2025)
    • A Setback with the Height-Adjustable Basin
    • Why We’re Fundraising: Bridging the Funding Gaps for MND Support
    • Bathroom Update (work starts next week)
    • The Struggles of Getting Occupational Therapist Services in Regional Victoria
    • Why I’ve Been Quiet Lately – Behind the Silence: MND, Aged Care, and the Fight for Support
    • A Surprise Vow Renewal: A Celebration of Love, Family & Friends
    • Demo Work Commenced
    • Bathroom Before Photos

Month: May 2025

The Paperwork Nightmare: Navigating Disability Support with MND

Posted on 1 May 20252 March 2026 by Nicole A
When Shane was diagnosed, we expected challenges. We expected difficult conversations, medical appointments, and adjusting to new realities. What we didn’t expect was the sheer mountain of paperwork that came with it. We have two lever arch files full of forms, applications, and endless...
Posted in Blog

Recent Posts

  • The days MND Takes More Than It Already Has
  • When Silence Hurts: MND, Grief, Work and the People Who Disappear
  • The Paperwork Nightmare: Navigating Disability Support with MND
  • One Step Closer: Bathroom Progress & Unexpected Kindness
  • Bathroom Renovation Update: One Step Closer to Accessibility

Recent Comments

  1. A Setback with the Height-Adjustable Basin – Shane Lewis MND Battle on Donation Form
  2. Why We’re Fundraising: Bridging the Funding Gaps for MND Support – Shane Lewis MND Battle on Donation Form
  3. Bathroom Update (work starts next week) – Shane Lewis MND Battle on Donation Form
  4. The Struggles of Getting Occupational Therapist Services in Regional Victoria – Shane Lewis MND Battle on Donation Form
  5. Why I’ve Been Quiet Lately – Behind the Silence: MND, Aged Care, and the Fight for Support – Shane Lewis MND Battle on Donation Form

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