When someone is diagnosed with a terminal illness like MND, it doesn’t just affect them, it ripples through their entire world. The support of friends, colleagues, and the wider community can make all the difference. But for many, including Shane, the silence that follows a diagnosis can be one of the most painful things to endure.
For example, Shane dedicated 17 years of his life to his job, working through Christmases, Easters, so that others could spend time with their families. His boss initially said he would visit, yet in the end, he never even made a phone call, sent a text, or offered a simple thank you for years of service. After nearly two decades of commitment, Shane’s departure was met with nothing other than a separation certificate sent via email. Specifically, the email simply stated, “Please find the separation certificate.” Later, when there was an issue and it had to be resent, the message read, “All fixed now. Sorry for the inconvenience.” A simple acknowledgment, such as a thank you for his 17 years of service, would have made all the difference.
We were disappointed, but sadly, we’ve since learned that this is all too common. Others in the MND community have shared similar experiences, some friends vanishing, workplaces moving on without so much as a farewell message.
That being said, we want to acknowledge that not everyone disappeared. Some of Shane’s colleagues and friends have shown up in the most incredible ways, offering their support, checking in, and making sure we know they care. Those who have stayed by his side have been amazing, and we are truly grateful for them. Then there is the people who Shane has not seen in years that have come from no where to offer support in many ways. To them we are just so incredibly appreciative.
We understand that it can be difficult to know what to say, but here’s the truth: saying something, anything, is better than silence. A simple message, a text, or even just acknowledging the situation can mean the world to someone facing a disease they can’t escape from. Shane can’t ignore MND. We, as his family, can’t ignore MND. Please, if you know someone going through this, don’t let discomfort stop you from reaching out.
