Bathroom Renovation Update: One Step Closer to Accessibility

It’s been a massive effort, but we’re so excited to share that Shane’s bathroom renovation is coming together! This isn’t just a home improvement, it’s about making sure Shane has a space that is both functional and welcoming. Too often, accessibility means stark, clinical, hospital-like...

The Silence That Hurts: When Friends and Colleagues Disappear

When someone is diagnosed with a terminal illness like MND, it doesn’t just affect them, it ripples through their entire world. The support of friends, colleagues, and the wider community can make all the difference. But for many, including Shane, the silence that follows a diagnosis can be one...

The Struggles of Getting Occupational Therapist Services in Regional Victoria

Navigating the complexities of motor neurone disease (MND) is a daunting journey, but accessing the right support services can make all the difference. Unfortunately, for families in regional Victoria like ours, finding an Occupational Therapist has been one of the biggest hurdles we’ve faced...

Why I’ve Been Quiet Lately – Behind the Silence: MND, Aged Care, and the Fight for Support

I’ve been trying to sit down and write for some time now, but life has been pulling me in every direction. Aside from Shane’s MND diagnosis and the ongoing saga of trying to get the bathroom done, we’ve also been navigating the aged care system for my Gran and Grandfather. In October, Gran...