Running in Support of MND (Berwick-Pakenham Gazette 12/02/2025)

Finn’s Fundraising Featured Again in the Pakenham Gazette! Finn’s incredible journey in raising funds and awareness for MND has once again been highlighted in the Pakenham Gazette (12th February 2025 edition)! This week’s article shines a light on his dedication, the overwhelming community...

MND Relay 2025

Team Glampa at the Great MND Relay – Our Personal Experience On the 8th of February, we gathered at Albert Park Lakeside Stadium as part of Team Glampa, ready to take on the Great MND Relay and show our unwavering support for Finn and Glampa, Shane Lewis. The team consisted of Finn (of course)...

Teaming up to fight MND (Berwick-Pakenham Gazette 05/02/2025)

Recently our little hero Finn was interviewed about his fundraising efforts for MND Vic by a reporter from the Pakenham Gazette. This weeks paper came out and there is a FULL page about his efforts complete with photos of him with MP Emma Vulin as well as Glampa Shane. A quote from Finn from the...

A Setback with the Height-Adjustable Basin

After finally kicking off the much-anticipated bathroom project, we’ve hit a significant roadblock with one of the key accessibility features: the height-adjustable basin. Our Occupational Therapist (OT) has advised that this basin is essential for Shane’s needs, but we’re now faced with two...

Why We’re Fundraising: Bridging the Funding Gaps for MND Support

When Shane was diagnosed with Motor Neurone Disease (MND), it quickly became clear that the journey ahead would be both emotionally and financially challenging. While MND is a condition that requires significant care and specialised equipment, there are glaring funding and resource gaps for...

Bathroom Update (work starts next week)

We’ve officially kicked off the bathroom project! With the builder starting next week, things are finally moving forward. We’ve got a plan (pictured roughly in an aerial view), which includes adding cavity sliders and widening some doorways to make the space more accessible for Shane. The...

The Struggles of Getting Occupational Therapist Services in Regional Victoria

Navigating the complexities of motor neurone disease (MND) is a daunting journey, but accessing the right support services can make all the difference. Unfortunately, for families in regional Victoria like ours, finding an Occupational Therapist has been one of the biggest hurdles we’ve faced...