Team Glampa at the Great MND Relay – Our Personal Experience On the 8th of February, we gathered at Albert Park Lakeside Stadium as part of Team Glampa, ready to take on the Great MND Relay and show our unwavering support for Finn and Glampa, Shane Lewis. The team consisted of Finn (of course)...
Recently our little hero Finn was interviewed about his fundraising efforts for MND Vic by a reporter from the Pakenham Gazette. This weeks paper came out and there is a FULL page about his efforts complete with photos of him with MP Emma Vulin as well as Glampa Shane. A quote from Finn from the...
After finally kicking off the much-anticipated bathroom project, we’ve hit a significant roadblock with one of the key accessibility features: the height-adjustable basin. Our Occupational Therapist (OT) has advised that this basin is essential for Shane’s needs, but we’re now faced with two...
When Shane was diagnosed with Motor Neurone Disease (MND), it quickly became clear that the journey ahead would be both emotionally and financially challenging. While MND is a condition that requires significant care and specialised equipment, there are glaring funding and resource gaps for...
We’ve officially kicked off the bathroom project! With the builder starting next week, things are finally moving forward. We’ve got a plan (pictured roughly in an aerial view), which includes adding cavity sliders and widening some doorways to make the space more accessible for Shane. The...
Navigating the complexities of motor neurone disease (MND) is a daunting journey, but accessing the right support services can make all the difference. Unfortunately, for families in regional Victoria like ours, finding an Occupational Therapist has been one of the biggest hurdles we’ve faced...
I’ve been trying to sit down and write for some time now, but life has been pulling me in every direction. Aside from Shane’s MND diagnosis and the ongoing saga of trying to get the bathroom done, we’ve also been navigating the aged care system for my Gran and Grandfather. In October, Gran...
In the lead-up to Mum and Shane’s wedding anniversary and Christmas, Amee, Colleen, and I wanted to do something truly special for Shane. We came up with the idea of a vow renewal as a Christmas present for him, an opportunity to celebrate their incredible journey together. It was also a...
On the last weekend of September (Grand Final weekend) we gathered friends and family to help; with the start of the bathroom demo. The plan was to get this done ourselves to reduce the money needed on the renovation and ensure it was available for the trades and materials we cant do ourselves. We...
Some photos of the bathroom before, as you can see this is not suitable for supporting someone with a condition such as Motor Neurone Disease, shower over bath is an obvious issue, but the space is also not wheelchair accessible as it currently stands.
