Navigating the complexities of motor neurone disease (MND) is a daunting journey, but accessing the right support services can make all the difference. Unfortunately, for families in regional Victoria like ours, finding an Occupational Therapist has been one of the biggest hurdles we’ve faced...
I’ve been trying to sit down and write for some time now, but life has been pulling me in every direction. Aside from Shane’s MND diagnosis and the ongoing saga of trying to get the bathroom done, we’ve also been navigating the aged care system for my Gran and Grandfather. In October, Gran...
In the lead-up to Mum and Shane’s wedding anniversary and Christmas, Amee, Colleen, and I wanted to do something truly special for Shane. We came up with the idea of a vow renewal as a Christmas present for him, an opportunity to celebrate their incredible journey together. It was also a...
On the last weekend of September (Grand Final weekend) we gathered friends and family to help; with the start of the bathroom demo. The plan was to get this done ourselves to reduce the money needed on the renovation and ensure it was available for the trades and materials we cant do ourselves. We...
Some photos of the bathroom before, as you can see this is not suitable for supporting someone with a condition such as Motor Neurone Disease, shower over bath is an obvious issue, but the space is also not wheelchair accessible as it currently stands.
I will update this post as we plan this out, but essentially the critical thing is the bathroom. My parents house has 2 bathrooms, but BOTH of them have a shower over the bath and they are just not set up for what Shane needs. The main ensuite, which is the bigger bathroom will require complete...
Earlier this year, Shane's 9-year-old grandson, Finn, was devastated upon learning of his grandfather's diagnosis. However, Finn, being the dynamic, caring, and passionate boy he is, turned his heartbreak into action. He rallied friends and family to participate in the "How Far Can You Go" MND...
