The Struggles of Getting Occupational Therapist Services in Regional Victoria

Navigating the complexities of motor neurone disease (MND) is a daunting journey, but accessing the right support services can make all the difference. Unfortunately, for families in regional Victoria like ours, finding an Occupational Therapist has been one of the biggest hurdles we’ve faced...

Why I’ve Been Quiet Lately – Behind the Silence: MND, Aged Care, and the Fight for Support

I’ve been trying to sit down and write for some time now, but life has been pulling me in every direction. Aside from Shane’s MND diagnosis and the ongoing saga of trying to get the bathroom done, we’ve also been navigating the aged care system for my Gran and Grandfather. In October, Gran...

Turning Devastation into Action

Earlier this year, Shane's 9-year-old grandson, Finn, was devastated upon learning of his grandfather's diagnosis. However, Finn, being the dynamic, caring, and passionate boy he is, turned his heartbreak into action. He rallied friends and family to participate in the "How Far Can You Go" MND...