We have posted a bit recently about the people who have disappeared since Shane’s diagnosis. Unfortunately, there have been many. And if I am honest, it is hard for that not to become a focus sometimes. When silence is loud, you feel it. But today I want to shift that focus. Because while many...
Fuck this disease. Fuck You MND. Some days it takes more than it already has. Some days, anger is easier than anything else. Mum and Shane went home after staying with us for just over a week, and within hours it was one of those days that reminds you how relentless MND can be. A lot of physical...
I want to share something that has been sitting heavily with me. Supporting someone with MND is brutal. There is no soft way to say it. Since Shane’s diagnosis, we have watched this disease take things piece by piece. First his voice.He lost his ability to speak and now communicates using a...