It is with great sadness that we share that Shane Lewis passed away peacefully at home today in Alexandra (Sunday 19th April 2026), with his wife Marlene Answer-Lewis by his side, surrounded by his dogs and family. After a two year battle with Motor Neurone Disease, Shane faced everything with...
Fuck this disease. Fuck You MND. Some days it takes more than it already has. Some days, anger is easier than anything else. Mum and Shane went home after staying with us for just over a week, and within hours it was one of those days that reminds you how relentless MND can be. A lot of physical...
I want to share something that has been sitting heavily with me. Supporting someone with MND is brutal. There is no soft way to say it. Since Shane’s diagnosis, we have watched this disease take things piece by piece. First his voice.He lost his ability to speak and now communicates using a...