We have posted a bit recently about the people who have disappeared since Shane’s diagnosis. Unfortunately, there have been many. And if I am honest, it is hard for that not to become a focus sometimes. When silence is loud, you feel it. But today I want to shift that focus. Because while many...
Fuck this disease. Fuck You MND. Some days it takes more than it already has. Some days, anger is easier than anything else. Mum and Shane went home after staying with us for just over a week, and within hours it was one of those days that reminds you how relentless MND can be. A lot of physical...
I want to share something that has been sitting heavily with me. Supporting someone with MND is brutal. There is no soft way to say it. Since Shane’s diagnosis, we have watched this disease take things piece by piece. First his voice.He lost his ability to speak and now communicates using a...
When Shane was diagnosed, we expected challenges. We expected difficult conversations, medical appointments, and adjusting to new realities. What we didn’t expect was the sheer mountain of paperwork that came with it. We have two lever arch files full of forms, applications, and endless...
It’s been a long road, but I’m happy to share that the bathroom renovation is nearly complete! There are still a couple of finishing touches left, but the space is fully functional, and the transformation has already made a huge difference. A Big Win: Creating a Warm & Inviting Space One...
It’s been a massive effort, but we’re so excited to share that Shane’s bathroom renovation is coming together! This isn’t just a home improvement, it’s about making sure Shane has a space that is both functional and welcoming. Too often, accessibility means stark, clinical, hospital-like...
Last year, Shane’s grandson Finn Cadman stood before Parliament and spoke about the realities of MND. At just nine years old, he showed more courage and determination than many adults. Finn didn’t just accept his grandfather’s (Glampa's) diagnosis, he turned his heartbreak into action,...
Finn’s Fundraising Featured Again in the Pakenham Gazette! Finn’s incredible journey in raising funds and awareness for MND has once again been highlighted in the Pakenham Gazette (12th February 2025 edition)! This week’s article shines a light on his dedication, the overwhelming community...
When we started planning the bathroom renovation, we had to arrange to get an Occupational Therapist (OT) report to access the My Aged Care funding to partly cover the costs.... why was this the case, the reason being that they had to ensure the space would meet Shane’s needs. The cost? $1800,...
When someone is diagnosed with a terminal illness like MND, it doesn’t just affect them, it ripples through their entire world. The support of friends, colleagues, and the wider community can make all the difference. But for many, including Shane, the silence that follows a diagnosis can be one...
